Hardest week

by | Oct 28, 2021

Yes this has probably been the hardest week yet.  Not because my treatment is getting the best of my but rather due to mishaps and overscheduling.

Pumpy left yesterday but not without letting me know who still controls parts of my life.  The nurse was scheduled to come between 3:30 and 4:30 to take him back.  Around 11, as I was sitting at my desk working, the pump alerted me that the reservoir was low.  I quickly stopped the alert and thought all was good.  Pumpy then alerted me that the tubing was blocked.  As I checked the tubing I pulled the whole part attached to the pump into my hand.  A quick look and I realized the pump had become disconnected from my chest port.  Someone really does not want me to have this full treatment.

After much panic and a call to the home infusion center I had the nurse come earlier to take pumpy away.  Of course that did not happen easily and there was additional drama with the nurse not calling before arrival and getting to my house when I was at my healing appointment.  I am so grateful to have the peaceful moments on the farm inside the spirit shed made of mud.

This has been a long week and I am definitely feeling it.  Definitely not my usual chipper self I have found myself wanting to go inward and remain close to home and my bed.  I know this to shall pass and I will start feeling better soon but I am listening to my body and trying not to stress myself too much.

I also fit in a visit with the surgeon as well as lab work and a follow up CT scan.  I am still awaiting those results but will update here when I have them back.  The crazy thing is I know they will be positive results because I feel it but there is still that voice in the back of my head wondering if that will really be the case.  I have to keep pushing that voice further back in my thoughts.

Gratitude for today:  Always grateful for clean flannel sheets, the morning sunrise and the promises it brings and hot coffee in my new snoopy mug.  It a color changing mug!!!!!!!

 

 

0 Comments

Submit a Comment

Your email address will not be published. Required fields are marked *

Please send donations in Tara's memory to:

The Appendix Cancer Pseudomyxoma Peritonei Research Foundation or a charity that is important to you.